Chronic Illness, Reflections

I Hate the Spoon Theory

There. I said it. I┬áhate the spoon theory. What is this "spoon theory", you ask? It's a metaphor developed by a woman named Christine Miserandino, who has Lupus. This was her attempt to describe what it means to be chronically ill. In the chronic illness community, it's become shorthand for describing our conditions, our energy… Continue reading I Hate the Spoon Theory

Managing A.S., Reflections

I’m a Thursday Girl, or … It’s Enbrel Day!

Thursday, August 24, 7:30am I'm awake. I'm in pain. It takes a few minutes for my brain to get going, but when it does, I realize,┬átoday is the day. After two months of preparation, this afternoon I will have my first shot of Enbrel. The last time I updated this blog, it was in the… Continue reading I’m a Thursday Girl, or … It’s Enbrel Day!